DISCLAIMER:

This blog does include some educational information about POTS (Postural Orthostatic Tachycardia Syndrome). However, it primarily consists of my thoughts, opinions, and personal experiences with this chronic disease. As someone who struggles with this disease daily, I am in no way attempting to minimize the seriousness of this chronic illness. With that being said, I would like to forewarn all readers that this blog does focus on the humorous stories that have occurred during all of the medical testing leading up to the diagnosis of POTS. I would also like to point out that I am in no way attempting to discredit any of the medical professionals I have worked with. They have all been wonderful and very helpful. I am simply pointing out just how difficult it is to diagnose POTS and the numerous ways it can be mis-diagnosed. If you do not find this site to be helpful, humorous, or hilarious, then please seek one of the other sites that is more fitting for you. I've personally never been a big fan of hate mail. Thanks and enjoy!

Tuesday, April 9, 2013

This week of my life was as fast paced as a turtle...But, I did find one thing turtles can do in life as quickly as men.

*This blog entry moves about as fast as a turtle.  It is not quite as entertaining as the others.  However, if you browse through these short paragraphs, I have included a video at the end that shows the one thing in life that turtles actually do as fast as men.*    


April 11, 2012 (Wednesday)

10:50 am - MCB Laboratory

The following day, I arrived to the clinic bright and early to produce a cup of my golden flow.  I will be honest, this was the one time I wish I was a male with two heads and one brain.  It is seriously next to impossible for females to produce a golden flow into a small cup and have it land only in the cup.  I mean, look at guys; they have a giant bowl to aim in with a small stream and still miss.  Imagine being a female and having it is the complete opposite.  **Random helpful hint to the ladies - If you are ever stranded in the woods, or intoxicated and need to "pop a squat", if you bend over and touch your toes, your urine will shoot straight back and the process will be as smooth as a Brazilian wax.  After I managed to produce my golden flow without getting any on my hands (no, I did not bend over and touch my toes, obviously), they drew more blood from my arms, and then it was off to the next test.




12:15 pm - Cardiology Electrocardiogram

The next procedure that was scheduled was a Cardiology Electrocardiogram.  This test was scheduled because of the chest pain I had reported having for several months prior to being admitted to the Mayo Clinic.  I had been told by other physicians that it was just anxiety.  However, I knew this was not anxiety because I had experienced anxiety my entire life, and this was far from the same.  So the first thing I did was change into one of their hot fancy gowns and began to walk down the hall to the room where the procedure took place.  I laid on the table and starred at the ceiling while the lady completing the procedure played connect the dots as she stuck the chest leads on my chest and then attached the cables.  It was dead silent this time - it just did not seem right to discuss strippers or any other topic for that matter.  Once I was hooked up correctly, the machine recorded the electrical activity of my heart and the procedure was over faster than a forty year old losing his virginity to one of Hugh Hefner's girlfriends.  Later that day the nurse did call stating that the results came back with Non Specific Electrical Changes, and that I would need to pick up a new itinerary with additional tests added to my schedule to follow up on this.

2:00 pm - Pulmonary Procedure - Nitric Oxide

During the initial physical, I reported a history of asthma since I was very young, and had begun having difficulty with it again that past winter.  This procedure was to test if my airways were inflamed which is a sign of asthma.  Let me tell you...this procedure totally blew, literally.  I was stuck in this little plastic cylinder blowing another tube as hard as I could for as long as the technician told me to.  The entire time, I was longing for the day, February 14th, which I was in between the elderly couple while we were all blowing.  On the plus side, I can say with all my practice over the past year, my blowing skills are certainly superb!

3:20 pm - Radiology Chest X-ray

I honestly do not even remember this appointment   However, in the report I received from the Clinic, it reported that my lungs were clear and there were no significant abnormalities.  Moving on...


April 12, 2012 (Thursday)


2:00 pm - EEG (Electroencephalogram)
One of the symptoms I had been experiencing throughout all of this is the feeling similar to a seizure.  Although my body did not appear to move externally, it felt as though every vein and part of my body internally was seizing.  Even my eyes would begin to feel as though they were shaking and I would be unable to visually focus on objects or my surroundings in general.  The preparation for this test was not fun.  I could not sleep more than 4 hours the night before, and my appointment was not until 2:00 that afternoon.  Normally, I would have been able to handle this; however, I had already hit a level of exhaustion that did not even compare to mono or anything else I have experienced.  So when I showed up for the appointment, they glued all of those little circles to my head and connected the wires to them.  Then I just had to sit there for a couple of hours, part of the time awake and then asleep.  The most annoying part of the entire test was taking the circles off of my scalp and trying to get the glue off.  I felt like the technician was searching for lice.  That glue is hard to get off of your scalp and out of your hair...especially when you were born with a natural afro.  The result of the EEG was normal with no epileptic activity seen.

April 13, 2012 (Friday)

10:00 am - Neurology Procedure -- ARS (Autonomic Reflex Study)

This test took several hours.  However, at this point I was so exhausted that I did not much care.  I was more than willing to lay on the bed/table and let them have their way with me, which is what they had to do.  The first part of this test is what is called the, Quantitative Sudomotor Axon Reflex Test (QSART). This test evaluates how the nerves that regulate your sweat glands respond to stimulation. Similar to the EEG, they stuck the circles to my bod and connected the wires.  Then a small electrical current passes through these to where they are placed, on your forearm, foot and leg, while a computer records how your nerves and sweat glands react. This is similar to what a bee sting feels like, only on your foot, leg, and forearm at the same time.  The result came back that the QSART responses were reduced.  This actually made sense.  I rarely ever sweat and whenever I workout with others, or trainers, they get after me saying that I am not even sweating yet.  I always responded telling them that was because I was a lady and only glistened, not sweated.  Turns out I was right; my body does not sweat like a normal person would.  Following this part of the test, came the second part, the Tilt Table Test.  This test monitors how your blood pressure and heart rate respond to changes in posture and position, simulating what occurs when you stand up after lying down by using a table that lays flat and then continually tilts you vertically and monitors your heart rate and blood pressure during this process.  I will say this was a first for me, being strapped down on my back with no control. Turns out, there is a first for everything.  Normally, your body compensates for the drop in blood pressure that occurs when you stand up by narrowing your blood vessels and increasing your heart rate. This response may be slowed or abnormal if you have autonomic neuropathy.  

3:00 pm - Gastroenterology Consultation

This next appointment was the one that I was the most excited for!  I was finally going to see a new GI doctor (Gastroenterologist), and being that my previous GI doctor was certainly not helpful, I was definitely hopeful I would have new information and a solution.  Since this first appointment was a consultation, I figured that I would meet with her and just answer basic questions about my symptoms and history, which I did..., at first.  Well, like everything else, there was more to it than just that for a consultation.  After an hour of shooting the shit (pun intended) about my history she had me change into one of those fabulous gowns.  When she returned to the room, she had me lay on the table and pushed around on my stomach.  The next thing I knew, I was being asked to lay in the fetal position...that is right, folks, I was blessed with another shocker!  Let me tell you, at some point, it stops being a shocker when you just start expecting a finger in your bum each time.  After meeting with the GI doctor, she ordered a series of additional tests for the following week to gather additional information and discover the problem and come up with a definite diagnosis and treatment.

5:10 pm - MCB Laboratory Visit

After receiving a little ace play, it was on to my final appointment, which was drawing more blood for additional testing.  After that, I made like a baby and slid out of that biatch for the weekend.  Since the Mayo Clinic does not do testing on the weekends, the parentals and I decided to have a little National Lampoon's Vegas Vacation style weekend and visit my little brother in Las Vegas...as well as the Hoover Dam...and Grand Canyon...



Here is the video I promised that proves turtles can do one thing in life as quickly as men...

tosh.comedycentral.com